Unique – rare chromosome and gene disorders
Unique is a source of information and support to families and individuals affected by any rare chromosome or gene disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free but the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.
Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders. Unique co-ordinates families to assist in research and has password-protected discussion forums for registered members, it also has social networking sites on facebook, twitter, etc. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 26,500 affected families and many relevant professionals as members worldwide in 100+ countries. A network of local contacts worldwide promote awareness of rare chromosome disorders and Unique to the general public and professionals.
Who to contact
Where to go
- The Stables
Station Road West
- RH8 9EE
- Membership is Free.